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Community

November 12, 2025

Introducing the Adult Exstrophy Provider Directory

We are thrilled to share some exciting news that has been months in the making. A-BE-C has officially launched our Adult Provider Directory a first-of-its-kind resource designed to help adults with congenital urologic conditions connect with knowledgeable urologists who understand their lifelong care needs. This project represents the best kind of patient–clinician collaboration. Our Adult Patient […]

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January 31, 2017

Meet the Texas Bladder Exstrophy Support Group

In 2015, a small group of three families came together to found the Texas Bladder Exstrophy Group. We are an online support group open to families in the Texas/Oklahoma area that are affected by Bladder Exstrophy. In the past year and a half, we have grown to a group of over 15 families that feel […]

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