September 15, 2025
The 2025 Annual Exstrophy Conference was held in Boston, MA and proudly hosted in conjunction with Boston Children’s.
October 28, 2024
The 2024 Annual Exstrophy Conference was held in Milwaukee, WI and proudly hosted in conjunction with Children’s Wisconsin.
November 13, 2023
Realizing that care for the entire patient – beginning with appropriate surgical counseling and preparation, to psychosocial support and postoperative management – is key to successful outcomes, the sessions focused on the challenges patients and families face through a spectrum of discussions and provide tools to show that BE Doesn’t Limit ME!
June 4, 2020
Couldn’t make it to the 2019 Conference? Sessions on coping with exstrophy now available!
March 27, 2020
A-BE-C traveled to Ahmedabad, India for the 12th Annual Operative Workshop on BE. Here is an update on Persis who received closure surgery at the workshop.
September 23, 2019
Over the past 3 years A-BE-C has helped facilitate surgeries for children with bladder exstrophy in Uganda, and trained Ugandan surgeons in India with the goal to work with Uro Care Hospital to build a medical facility where children can both undergo surgeries and receive follow up treatments. Making an Impact in Uganda The success […]
August 29, 2019
Your gift today will allow us to invest in our Uganda Initiative, which means more lives healed, more lives restored, more lives saved. More children reaching their greatest life purpose and potential.
August 2, 2019
The 2019 International Exstrophy Conference was a huge success, mostly due to the dedication and planning of the team at Children’s Hospital Los Angeles. Our heartfelt thanks goes out to the CHLA team for orchestrating a well organized, insightful event. It was a great experience for all attendees! Highlights of the weekend Highlights included sessions […]
May 13, 2019
A-BE-C is excited to announce the addition of Ann & Robert H. Lurie Children’s Hospital of Chicago to its prestigious list of Centers of Excellence. Association for the Bladder Exstrophy Community (A- BE-C) is pleased to add Ann & Robert H. Lurie Children’s Hospital of Chicago to its prestigious list of Centers of Excellence. A-BE-C’s Centers […]
May 6, 2019
A-BE-C is excited to announce the addition of Dr. Evalynn Vasquez and Misty Blue Foster to its Advisory Board. Our board helps to shape and guide the strategy of the organization and is vital to the success of our mission: To make the highest standards of treatment, care and support within reach of all […]