September 15, 2025
The 2025 Annual Exstrophy Conference was held in Boston, MA and proudly hosted in conjunction with Boston Children’s.
October 28, 2024
The 2024 Annual Exstrophy Conference was held in Milwaukee, WI and proudly hosted in conjunction with Children’s Wisconsin.
November 13, 2023
Realizing that care for the entire patient – beginning with appropriate surgical counseling and preparation, to psychosocial support and postoperative management – is key to successful outcomes, the sessions focused on the challenges patients and families face through a spectrum of discussions and provide tools to show that BE Doesn’t Limit ME!
October 24, 2020
Check out the video from our virtual back to school conference, where we discussed back to school concerns for BE kids and families, talk about Covid related issues, and provide tips for bathroom procedures.
June 22, 2020
Since 2009, a team of surgeons, anesthesiologists, social workers, and other healthcare providers from hospitals in India and the U.S. have worked together to help more children in Asia and Africa receive the complex surgery necessary to address bladder exstrophy.
June 4, 2020
Couldn’t make it to the 2019 Conference? Sessions on coping with exstrophy now available!
April 29, 2020
The very entertaining Paul Kerensa recently hosted a funny, relatable, and encouraging show about his journey with exstrophy. The event was live on Facebook, but you can still view it here. Suitable for all ages!
December 3, 2019
Sadly, the beginning of Johnson’s story is one of many – there are hundreds of children just like him that are feeling hopeless and helpless. Who are suffering without access to care and treatment. And for every child like Johnson, there are parents feeling the anguish of not being able to properly care for their […]
January 9, 2019
The Boy with the Tiny Belly Button is a wonderful animated film for all children born with bladder exstrophy.
November 27, 2018
The Uganda Initiative is launching as part of A-BE-C’s work in global care for bladder exstrophy. See how–together–we’re already making an impact in this special preview of our new extraordinary documentary. [button url=”https://secure.qgiv.com/for/eyx8js” style=”xsmall|small|normal”]Give Today[/button]