October 24, 2020
Check out the video from our virtual back to school conference, where we discussed back to school concerns for BE kids and families, talk about Covid related issues, and provide tips for bathroom procedures.
October 24, 2020
A-BE-C recently held its first virtual conference via Zoom! Dr. Elizabeth R. Mueller, Loyola University Chicago Stritch School of Medicine, kicked off the event by discussing research findings that suggest a lack of bladder health education in school systems, which can negatively impact the health of school-aged children. Pamela Artigas, Executive Director of A-BE-C, […]
May 2, 2020
[vc_row row_container=”no_container”][vc_column][vc_column_text]While advances have been made in surgical approaches to the management of exstrophy, less is known about the psychosocial development and adjustment particularly as children and their family’s progress to childhood and adolescence. One of key issues that many parents struggle with is how to talk to others about this condition. What happens when […]
November 19, 2018
Dr. Tony Khoury Chief of Pediatric Urology at both Children’s Hospital of Orange County (CHOC) Children’s Urology Center and the University of California-Irvine Medical Center, provides this helpful overview of the factors involved in urinary continence in children with bladder exstrophy. “100 percent dryness is critical and achievable in every one of our bladder exstrophy patients.” […]
November 14, 2018
Understanding the facts about the risks of bladder cancer and how to reduce them are important topics for bladder exstrophy patients and their families. As part of Bladder Health Month, Dr. John V. Kryger talked with A-BE-C’s Pamela Artigas to help clarify the facts and provide recommendations to the A-BE-C community. https://www.youtube.com/watch?v=GgAX9oVeSbE
November 11, 2018
People with bladder exstrophy are at greater risk for developing urinary tract infections. (UTIs). As part of Bladder Health Month, Dr. Ranjiv Mathews, Director of Pediatric Urology and Professor at SIU Medicine took a break from surgery to share some insights about UTIs especially for bladder exstrophy patients and their parents. Download the accompanying handout. https://www.youtube.com/watch?v=CWIv9AlHbLc
August 10, 2016
Dr. Gearhart provides details about what makes a successful primary exstrophy closure, why some closures fail, how to prevent failed closures, the types of failures and the treatment of failed closures.
June 23, 2016
Dr. Paul Merguerian discusses the management and long term outcomes of children with bladder exstrophy and epispadias, the initial management of pelvic osteotomies, and the goals of long-term management.
May 10, 2015
Dr. Heiko Reutter is a world renown researcher in the field of pediatrics and human genetics. In this webinar Dr. Reutter will share his research and insights on the discovery of a genetic mutation associated with bladder exstrophy.
October 24, 2014
In this two-part webinar, Dr. Marlo Eldridge shares her deep experience and expertise and offers specific tips and insights to parents and providers.