September 12, 2024
We are committed to creating a self-sustaining bladder exstrophy community in Sub-Saharan Africa. On our upcoming Family Education Day, over 50 families from Uganda, South Sudan, and Burundi will come together with our Global Care team for a day focused on education, empowerment, and connection.
November 22, 2023
The A-Be-C Uganda initiative continues to grow with each passing year. This October, A-BE-C was represented by a dedicated team of surgeons, nurses, a social worker, and patient advocates.
April 11, 2023
After two years of delays due to Covid, and then another delay due to an Ebola outbreak in Uganda, the US team was finally able to hold our second workshop at Uro Care in Kampala. Our committed team treated, connected with and supported 23 families from all over Uganda.
May 2, 2020
[vc_row row_container=”no_container”][vc_column][vc_column_text]While advances have been made in surgical approaches to the management of exstrophy, less is known about the psychosocial development and adjustment particularly as children and their family’s progress to childhood and adolescence. One of key issues that many parents struggle with is how to talk to others about this condition. What happens when […]
April 1, 2019
Developing a Program for Transference of Complex Surgical Reconstructive Skills
October 24, 2016
We are pleased to announce that three mental health providers have joined the advisory board of the Association for the Bladder Exstrophy Community (A-BE-C). All three specialize in pediatric urology and are active in the bladder and cloacal exstrophy community. Many of the world’s leading medical experts in the treatment of bladder exstrophy have long […]