Understanding Exstrophy
Learn the basics of bladder exstrophy, diagnosis, and what to expect after diagnosis.
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What is Bladder Exstrophy

Living With Bladder Exstrophy

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LIFE WITH BLADDER EXSTROPHY

Newborn Care

Exstrophy in Adolescence

Lifelong Care

Newly Diagnosed? Start Here

Receiving a diagnosis of bladder exstrophy can feel overwhelming. Explore trusted information, understand next steps, and connect with resources designed to support your family from the beginning.

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Patient Care & Research
Explore treatment options, long-term care, specialists, and medical resources.
TREATMENT

Treatment & Surgery

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EXSTROPHY IN ADULTS

Adult Health & Wellness

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RESEARCH

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L.I.F.E. Outcomes Survey

Finding the Right Care Matters

ladder exstrophy is a rare and complex condition that benefits from experienced medical care. Learn about treatment approaches, specialists, and long-term care resources.

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Resources
Practical tools, emotional support, and everyday resources for living with bladder exstrophy.
EVERYDAY LIFE

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EDUCATIONAL RESOURCES

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Support Beyond Surgery

Living with bladder exstrophy involves more than medical care. Discover practical tools, emotional support, school resources, and wellness guidance for every stage of life.

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Be Part of a Community
By working together, we can create lasting change for individuals and families affected by bladder exstrophy.

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About A-BE-C
Learn about our mission, leadership, advocacy efforts, and global impact.
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OUR IMPACT

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Making a Global Impact

A-BE-C works to improve access to care, education, advocacy, and support for individuals and families affected by bladder exstrophy around the world.

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Montreal Children’s Hospital

Dr. Pippi Salle | Association for the Bladder Exstrophy Community

September 13, 2024

Dr. Joao Luiz Pippi Salle Receives 2024 Humanitarian Award

A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. Joao Luiz Pippi Salle, Professor of Urology, SickKids Hospital and Co-Director of the Center for Pelvic Reconstruction.

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