September 13, 2024
A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. Joao Luiz Pippi Salle, Professor of Urology, SickKids Hospital and Co-Director of the Center for Pelvic Reconstruction.
September 8, 2023
A-BE-C recently presented its Richard W. Grady Humanitarian Award to Dr. William Reiner, Child and Adolescent Psychiatry, Urology. Dr Reiner, a world-renowned Child and Adolescent Psychiatrist, spent his career focused on the psychological aspects of bladder exstrophy.
April 11, 2023
A-BE-C is so proud to be a part of the annual Bladder Exstrophy workshop which celebrated its 15th year in January!!! After two days of extensive discussion and five days of complex surgeries, I can’t thank Civil Hospital enough for their ongoing commitment to our beautiful children and families living with bladder exstrophy.
February 1, 2023
Anna Artigas, daughter of Executive Director Pamela Artigas, is traveling with A-BE-C for the 2023 International Exstrophy Workshop in Uganda as part of a service project to provide support to teens with exstrophy.
September 1, 2022
A-BE-C recently presented its Richard W. Grady Humanitarian Award to John P. Gearhart, M.D., Johns Hopkins Professor of Pediatrics and Urology. The distinguished award was presented during the 2022 International Exstrophy Conference in Baltimore, MD.
June 23, 2020
An article based on a survey conducted in 2019 by Seattle Children’s and A-BE-C regarding adult females with exstrophy and their long-term sexual, reproductive, and urinary outcomes has been published.
June 22, 2020
Since 2009, a team of surgeons, anesthesiologists, social workers, and other healthcare providers from hospitals in India and the U.S. have worked together to help more children in Asia and Africa receive the complex surgery necessary to address bladder exstrophy.
June 20, 2020
Family shares their story and thankfulness for the A-BE-C community and the team at Seattle Children’s.
August 30, 2019
You may remember a survey conducted earlier this year by Seattle Children’s and A-BE-C regarding adult females with exstrophy and their long-term sexual, reproductive, and urinary outcomes. We received an overwhelming response thanks to our amazing BE community. The research team at Seattle Children’s has been focused on adding the patient perspective to […]
July 6, 2018
The Association for the Bladder Exstrophy Community (A-BE-C) wants to shorten the time it takes families to find complete and effective care for their children born with bladder or cloacal exstrophy. That’s why A-BE-C is launching a Centers of Excellence program that recognizes best-in-class care. The first eight U.S. hospitals to report meeting its rigorous criteria […]