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July 22, 2026

Courage to Shine 2026: Thomas Vincent

One of the most memorable moments of the 2026 A-BE-C Annual Conference in Los Angeles was celebrating Thomas Vincent, recipient of this year’s Courage to Shine Award. The award recognizes individuals who embody resilience, inspire others, and make a meaningful impact within the bladder exstrophy community. Thomas’s journey exemplifies each of those qualities. As part […]

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May 8, 2026

Historic Consensus: A New Era for Bladder Exstrophy Care

From Patient to Researcher: A Life Shaped by Bladder Exstrophy “I stand before you today not as an Executive Director, but as a mother.” — Pamela Artigas Those were the words that changed the tone of the room during a recent gathering of global bladder exstrophy leaders at a three-day CME course and panel discussion at […]

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2025 Recap | Bladder Exstrophy

December 29, 2025

A Year of Knowledge, Connection and Care

As 2025 draws to a close, the Association for the Bladder Exstrophy Community (A-BE-C) reflects on a year defined by expanded global reach, strengthened resources, and meaningful community connections. From international collaboration to new tools for patients and families, the past year underscored the importance of empowering individuals through trusted information and supportive networks.

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December 11, 2025

Strengthening Global Connections for the Bladder Exstrophy Community

The Association for the Bladder Exstrophy Community (A-BE-C) recently joined international support organizations from around the world for the first-ever Global Congress on Advocacy and Community Collaboration—a landmark gathering dedicated to improving care, awareness, and connection for individuals and families affected by bladder exstrophy.

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with community | Bladder Exstrophy

October 16, 2025

Uganda 2025: Building Access to Care Across East Africa

This September, A-BE-C returned to Uganda for our 6th annual surgical workshop at EMERGENCY Children’s Hospital, providing expert surgical care and clinic services for more than 100 children and families from across East Africa.

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Dr. Joseph Borer receives Richard Grady Humanitarian Award

October 1, 2025

Dr. Joseph Borer Honored with the 2025 Richard W. Grady Humanitarian Award

We are proud to celebrate Dr. Joseph Borer, a world-renowned pediatric urologist and surgeon, as the recipient of this year’s Richard W. Grady Humanitarian Award which was recently presented by Dr. Evalynn Vasquez at the A-BE-C Annual Exstrophy Conference. This recognition reflects not only his extraordinary contributions to the field of urology, but also the compassion, dedication, and humility he brings to every patient and family he serves.

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2025 Courage to Shine Award | George Hunt III | Association for the Bladder Exstrophy Community

July 28, 2025

2025 Courage to Shine Award: George Hunt III

George Hunt III received the 2025 Courage to Shine award at the International Exstrophy Conference in Boston, MA.

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July 2, 2025

One Act of Kindness Can Change Everything

Since 2019, A-BE-C has deepened its commitment to children with bladder exstrophy in Uganda with the A-BE-C Uganda Initiative, a team of passionate surgeons, nurses, and social workers who travel to Uganda each year. These volunteers pay their own way, leave their families behind, and work alongside Ugandan medical professionals to perform surgeries, provide training, and build sustainable local expertise.

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ABEC adult patient advisory council in washington, DC

April 24, 2025

Raising Our Voices in Washington: A-BE-C at the AUA Advocacy Summit

A-BE-C proudly took part in the AUA Advocacy Summit in Washington, D.C.—a powerful event that brings together urologists, patient advocates, and policy makers to influence healthcare legislation and elevate the needs of the urologic patient community.

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India | Bladder Exstrophy | IBEC

February 25, 2025

Uniting the World’s Brightest Minds: The 2025 IBEC Conference at CIVIL Hospital

Imagine a room filled with 51 of the world’s top pediatric urology specialists, all gathered with a single mission—to transform the lives of children born with bladder exstrophy. That’s exactly what happened at CIVIL Hospital, as it proudly hosted the 2025 International Bladder Exstrophy Collaborative (IBEC) Conference!

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