What stood out most this year was not only the expert surgical care—led by some of the most experienced exstrophy surgeons in the world—but the growing sense of continuity and community. Families traveled long distances from across East Africa, often facing significant logistical challenges simply to reach care. For many, this was the first time they had ever met another family living with bladder exstrophy.
Beyond the operating room and clinic, families came together for a Family Education and Community Day, sharing meals, music, and practical knowledge. Parents spoke openly. Children played freely, and questions that had gone unasked for years finally had space to be heard.