February 1, 2023
Anna Artigas, daughter of Executive Director Pamela Artigas, is traveling with A-BE-C for the 2023 International Exstrophy Workshop in Uganda as part of a service project to provide support to teens with exstrophy.
January 16, 2023
Rachel Althizer is traveling with A-BE-C for the 2023 International Exstrophy Workshop in Ahmedabad, India, as a social worker to assist children and families with exstrophy as they prepare for surgery.
December 22, 2022
Janet Rankin shares her story of perseverance throughout her life with exstrophy and how the love of her husband saved her life.
September 1, 2022
A-BE-C recently presented its Richard W. Grady Humanitarian Award to John P. Gearhart, M.D., Johns Hopkins Professor of Pediatrics and Urology. The distinguished award was presented during the 2022 International Exstrophy Conference in Baltimore, MD.
June 3, 2022
Dr. Canning gave of himself completely in doing his utmost to improve every child’s life that he touched, to the best of his ability. He always put his patients’ care, safety and quality of life first in every conversation and plan of care. The entire BE community will miss his tremendous passion, kindness, availability and great skill.
May 24, 2022
“Imagine the feeling of sleeping on a wet bed every night and to wake up very early to clean it and put it on the roof to dry before people wake up.”
April 8, 2022
Khadidja’s childhood memories are mostly of struggle. She often leaked urine and kids her age always made fun of her. They criticized her for how she walked, and how her thighs never looked as “normal” as theirs.
March 7, 2022
Johnson, now a grown up boy, looks so healthy and energetic. He told me, “he feels pretty fine.” He has not had any health complications for some time now. Johnson is still in school and progressing well, currently in primary three.
March 7, 2022
Treasure is now a joyful three-and-a-half year old and currently has no major health challenges. Although she has not been able to be seen in person in the clinic, A-BE-C has been able to care for her remotely through telemedicine.
November 12, 2021
Late in the day at a makeshift ‘medical mission’ clinic in the Bahamas as the doors were closing for the day, a family hesitantly knocked on the door. Judging by the looks on their faces, the volunteer nurses knew they were desperate for help. Avles, an adorable five year old boy stood before them – they could smell him before they met him. Alves’ father, Lucner, out of desperation and faith asked if they would see his child, not really expecting they could do anything.