November 16, 2019
Four-year-old Khushbakht of Pakistan underwent her first successful bladder exstrophy repair and pelvic osteotomy in Doha, Qatar. Her journey to effective treatment was prompted by a heartfelt plea from her father to A-BE-C, which lead to worldwide support.
September 23, 2019
Over the past 3 years A-BE-C has helped facilitate surgeries for children with bladder exstrophy in Uganda, and trained Ugandan surgeons in India with the goal to work with Uro Care Hospital to build a medical facility where children can both undergo surgeries and receive follow up treatments. Making an Impact in Uganda The success […]
May 20, 2019
Participants and supporters at the 3-on-3 Basketball Tournament hosted by the Texas Bladder Exstrophy Group The 3rd Annual BE Extraordinary 3-on-3 Basketball Tournament was once again a huge success. Hundreds of supporters, players and volunteers came out to raise money for this rare condition and support individuals with exstrophy. Cook Children’s Pediatric Urology has A-Peel! […]
May 13, 2019
A-BE-C is excited to announce the addition of Ann & Robert H. Lurie Children’s Hospital of Chicago to its prestigious list of Centers of Excellence. Association for the Bladder Exstrophy Community (A- BE-C) is pleased to add Ann & Robert H. Lurie Children’s Hospital of Chicago to its prestigious list of Centers of Excellence. A-BE-C’s Centers […]
February 11, 2019
[vc_row][vc_column][vc_column_text] 8 Healthy Cathing Habits Download the 8 Healthy Cathing Habits poster! It’s a free PDF file that is ready to print. Catheterization or “cathing” is a fact of life for many bladder exstrophy patients. These eight healthy cathing habits help patients reduce the risk of urinary tract infections (UTIs) and are important in […]
October 23, 2018
The quality of life for Ugandan bladder exstrophy patient Johnson (Ndyabagye) continues to improve since receiving his first surgery more than two years ago. You may remember first reading about him in 2016 as an untreated bladder exstrophy patient in constant physical pain. After two successful surgeries, last year’s “good news” post reported Johnson was no […]
May 10, 2018
Congratulations and big thank you to all involved in this year’s BE Extraordinary 3-on-3 Basketball Tournament! A special thanks to Brandi McSwain, one of the organizers who shares these highlights: A day of celebrating of kids with bladder exstrophy and raising money for a wonderful organization! What a great day celebrating our BE kids, raising community […]
March 15, 2018
Those who knew the late Dr. Richard W. Grady understand his unwavering commitment to children and families affected by bladder exstrophy. His global humanitarian work helped to elevate the standards of care for children born with this rare medical condition, and continues to improve the lives of families who have mostly been ignored and marginalized […]
January 22, 2018
Approximately 110 children with bladder exstrophy receive life-changing treatment and care at the international eight day event Safe, affordable and timely treatment can become a standard of care anywhere in the world for children born with bladder exstrophy. This is the message Pamela Block, Association for the Bladder Exstrophy Community’s (A-BE-C’s) executive director and others on […]
May 20, 2017
Dr. Richard Grady saw medicine as part science, part art. It was the cornerstone of his medical practice and his extensive humanitarian work. He embodied this philosophy. On April 25th, after a three-year battle with brain cancer, Dr. Grady passed away. With his passing, the bladder exstrophy community lost a tireless champion and a medical visionary. […]